Los profesionales de la salud como fuentes de información: un estudio cualitativo sobre la información pediátrica

Montesi, Micaela and Álvarez Bornstein, Belén Los profesionales de la salud como fuentes de información: un estudio cualitativo sobre la información pediátrica. Información, Cultura y Sociedad, 2016, n. 34, pp. 27-44. [Journal article (Paginated)]

[img]
Preview
 Text (Texto en Español)
n34a03.pdf - Published version
Available under License Creative Commons Attribution Non-commercial No Derivatives.
Download (165kB) | Preview

English abstract

The article describes how medical information is perceived by a group of mothers who practice attachment parenting when the information is provided by health professionals. Data were collected through 21 semi-structured interviews and the auto-ethnographic experience of one of the authors. Two major themes emerged. Firstly, the participants experience an informational conflict as a consequence of their interaction with health staff. The information they receive from the pediatrician may clash with both internal and external information sources, including some trusted information sources such as other doctors. Secondly, the information obtained from health professionals is influenced by the doctor - patient relationship that the participants perceive as unequal. Within this unequal relationship, patients are unable to contribute all the information they could and receive some information negatively. These phenomena are described and analyzed within the relevant literature and quoting significant fragments of the interviews.

["eprint_fieldopt_linguabib_" not defined] abstract

El artículo describe la percepción de la información recibida en el ámbito de la consulta pediátrica por parte de un conjunto de madres que se adhieren a un tipo de crianza, conocido como “crianza con apego”. A través del análisis de 21 entrevistas semi-estructuradas y de la experiencia auto-etnográfica de una de las autoras, se presentan dos grandes cuestiones relativas a la información recibida por parte de los profesionales de la salud. Por un lado, las experiencias recogidas permiten hablar de conflicto informacional como consecuencia de la interacción con los profesionales de la salud. La información que reciben del pediatra colisiona con otras fuentes de información, tanto internas como externas, incluidas algunas autorizadas como otros médicos. Por otro, la información recibida por los profesionales de la salud se sitúa en el contexto de una relación desigual que afecta tanto a las interacciones informacionales, como a la propia percepción de la información por parte de las madres estudiadas. A través de extractos significativos de las entrevistas se describen estos fenómenos y se analizan a la luz de la literatura relevante.

Item type: Journal article (Paginated)
Keywords: profesionales de la salud, crianza con apego, sociedad, información contradictoria, relación médico-paciente, fuentes de información, comportamiento informacional, health providers, attachment parenting, society, conflicting information, doctor-patient relationship, information sources, information behavior
Subjects: B. Information use and sociology of information > BH. Information needs and information requirements analysis.
Depositing user: Graciela Giunti
Date deposited: 26 Feb 2017 09:04
Last modified: 26 Feb 2017 09:04
URI: http://hdl.handle.net/10760/30890

References

Ahern, David K.; Susan S. Woods; Marie C. Lightowler; Scott W. Finley y Thomas K. Houston. 2011. Promise of and potential for patient-facing technologies to enable meaningful use. En American Journal of Preventive Medicine. Vol. 40, no. 5, S162-S172.

Ammentorp, Jette; Svend Sabroe; Poul- Eric Kofoed y Jan Mainz. 2009. Effects of a communication course for clinicians on parents’ perception of care–a randomized controlled trial. En Scandinavian Journal of Caring Sciences. Vol. 23, no. 3, 506-517.

Baker, Sarah R.; Precilla Y. L. Choi; Carol A. Henshaw y Joanne Tree. 2005. ‘I Felt as though I’d been in Jail’: Women’s Experiences of Maternity Care during Labour, Delivery and the Immediate Postpartum. En Feminism & Psychology. Vol. 15, no. 3, 315-342.

Barry, Michael J. y Susan Edgman-Levitan. 2012. Shared decision making—the pinnacle of patient-centered care. En New England Journal of Medicine. Vol. 366, no. 9, 780-781.

Beach, Mary Catherine y Thomas Inui. 2006. Relationship‐centered Care. En Journal of General Internal Medicine. Vol. 21, no. S1, S3-S8.

Bea-Muñoz, Manuel; María Medina-Sánchez y Mariano Flórez-García. 2015. ¿Qué información sobre su salud buscan los lesionados medulares españoles en Internet? En Revista de Neurología. Vol. 60, no. 8, 345-350.

Bernad Vallés, Mercedes; José Ángel Maderuelo Fernández y Pilar Moreno González. 2016. Necesidades de información sobre salud y enfermedad de usuarios de servicios sanitarios de atención primaria de Salamanca. En Atención Primaria. Vol. 48, no. 1, 15-24.

Bowlby, John. 1969. Attachment and loss: Attachment (vol. 1). New York: Basic Books.

Cooper, Linda y Chrissie Rogers. 2015. Mothering and 'insider' Dilemmas: Feminist Sociologists in the Research Process. En Sociological Research Online. Vol. 20, no. 2, 5.

Crawley, Sara. L. 2012. Autoethnography as Feminist Self-Interview. En Gubrium, J.F.; J.A. Holstein; A. B. Marvasti y K.D. McKinney, eds. The SAGE handbook of interview research: The complexity of the craft. London: Sage Publications Ld. p. 143-161.

Crooks, Valorie A. 2006. “I Go On The Internet; I Always, You Know, Check To See What’s New”: Chronically Ill Women’s Use of Online Health Information to Shape and Inform Doctor-Patient Interactions in the Space of Care Provision. En ACME: An International E-Journal for Critical Geographies. Vol. 5, no. 1, 50-69.

Díaz-Sáez, Jorge; Daniel Catalán-Matamoros; M. Milagros Fernández-Martínez y Genoveva Granados-Gámez. 2011. La comunicación y la satisfacción de las primíparas en un servicio público de salud. En Gaceta Sanitaria. Vol. 25, no. 6, 483-489.

Doyle, Emma. 2013. Seeking advice about children’s health in an online parenting forum. En Medical Sociology Online. Vol. 7, no. 3, 17-28.

Duggan, M. y A. Lenhart, 2015. Parents and social media. Washington, DC: Pew Research Center Report.

Ellis, Caroline. 2004. The ethnographic I: A methodological novel about autoethnography. Walnut Creek, CA: AltaMira Press

Ellis, Caroline y Tony E. Adams. 2014. The Purposes, Practices, and Principles of Autoethnographic Research. En Leavy, P., The Oxford Handbook of Qualitative Research. Oxford: Oxford University Press. p. 254-275.

Ellis, Caroline; Tony E. Adams y Arthur P. Bochner. 2011. Autoethnography: an overview. En Historical Social Research/Historische Sozialforschung. Vol. 36, no. 4, 273-290.

Faircloth, Charlotte. 2010. 'What Science Says is Best': Parenting Practices, Scientific Authority and Maternal Identity. En Sociological Research Online. Vol. 15, no. 4, 4.

Feudtner, Chris. 2007. Collaborative communication in pediatric palliative care: a foundation for problem-solving and decision-making. En Pediatric Clinics of North America. Vol. 54, no. 5, 583-607.

Fox, Susannah y Maeve Duggan. 2013. Health Online 2013. Washington, DC: Pew Research Center Report.

Genuis, Shelagh K. 2012. Constructing “sense” from evolving health information: a qualitative investigation of information seeking and sense making across sources. En Journal of the American Society for Information Science and Technology. Vol. 63, no. 8, 1553-1566.

Gómez-Besteiro, María Inmaculada; Jorge Somoza-Digón; Margot Einöder-Moreno; María Noelia Jiménez-Fraga; Susana Castiñeira-Pereira y María Luisa Feijoo-Fuentes. 2012. Calidad de atención en salud percibida por los pacientes en un centro de salud urbano de A Coruña. En Enfermería Clínica. Vol. 22, no. 4, 182-190.

González-Teruel, Aurora y M. Francisca Abad-García. 2012. Grounded theory for generating theory in the study of behavior. En Library & Information Science Research. Vol. 34, no. 1, 31-36.

González-Teruel, Aurora y María Teresa Barrios Cerrejón. 2012. Métodos y técnicas para la investigación del comportamiento informacional. Fundamentos y nuevos desarrollos. Gijón: Trea.

Jaráiz, Erika; Nieves Lagares y María Pereira. 2013. Los componentes de la satisfacción de los pacientes y su utilidad para la gestión hospitalaria. En Revista Española de Ciencia Política. Vol. 32, Julio, 161-181.

Hämeen-Anttila, Katri; Hedvig Nordeng; Esa Kokki; Johanna Jyrkkä; Angela Lupattelli; Kirsti Vainio y Hannes Enlund. 2014. Multiple information sources and consequences of conflicting information about medicine use during pregnancy: a multinational Internet-based survey. En Journal of Medical Internet Research. Vol. 16, no. 2, e60.

Hernansanz Iglesias, Francisco. 2015. Los cambios en el paciente desde el punto de vista médico. En Medicina General y de Familia. Vol. 4, no. 3, 94-99.

Jung, M. 2013. Determinants of health information-seeking behavior: implications for post-treatment cancer patients. En Asian Pacific journal of cancer prevention: APJCP. Vol. 15, no. 16, 6499-6504.

López, Lori Kido. 2009. The radical act of 'mommy blogging': redefining motherhood through the blogosphere. En New Media & Society. Vol. 11, no. 5, 729-747.

Marín-Torres, Viviana; Justo Valverde Aliaga; Ignacio Sánchez Miró; María Isabel Sáenz del Castillo Vicente; Elena Polentinos-Castro y Araceli Garrido Barral. 2013. Internet como fuente de información sobre salud en pacientes de atención primaria y su influencia en la relación médico-paciente. En Atención Primaria. Vol. 45, no. 1, 46-53.

Marton, Christine y Chun Wei Choo. 2012. A review of theoretical models of health information seeking on the web. En Journal of Documentation. Vol. 68, no. 3, 330-352.

Medina Aguerrebere, Pablo. 2012. Fuentes de información médica. Barcelona: Editorial UOC. Vol. 6

Mira, José Joaquín y Jesús Aranaz. 2000. La satisfacción del paciente como una medida del resultado de la atención sanitaria. En Medicina Clínica. Vol.114, Supl 3, 26-33.

Niela-Vilén, Hannakaisa; Anna Axelin; Sanna Salanterä y Hanna-Leena Melender. 2014. Internet-based peer support for parents: A systematic integrative review. En International Journal of Nursing Studies. Vol. 51, no. 11, 1524-1537.

Papen, Uta. 2013. Conceptualising information literacy as social practice: a study of pregnant women’s information practices. En Information Research. Vol. 18, no. 2, 280.

Plantin, Lars y Kristian Daneback. 2009. Parenthood, information and support on the internet. A literature review of research on parents and professionals online. En BMC Family Practice. Vol. 10, no. 1, 34.

Poot, F. 2009. Doctor–patient relations in dermatology: obligations and rights for a mutual satisfaction. En Journal of the European Academy of Dermatology and Venereology. Vol. 23, no. 11, 1233-1239.

Radey, Melissa y Karen A. Randolph. 2009. Parenting sources: how do parents differ in their efforts to learn about parenting? En Family Relations. Vol. 58, no. 5, 536-548.

Rivano Eckerdal, Johanna. 2012. Information sources at play: The apparatus of knowledge production in contraceptive counseling. En Journal of Documentation. Vol. 68, no. 3, 278-298.

Ruiz-Moral, Roger; Enrique Gavilán-Moral; Luis Ángel Pérula de Torres e Inmaculada Jaramillo-Martín. 2008 ¿Cuáles son las expectativas de los pacientes cuando acuden a una consulta de atención primaria y qué piensan los médicos sobre ellas? En Revista de Calidad Asistencial. Vol. 23, no. 2, 45-51.

Sadasivam, Rajani S.; Rebecca L. Kinney; Stephenie C. Lemon; Sthephenie L. Shimada; Jeroan J. Allison y Thomas K. Houston. 2013. Internet health information seeking is a team sport: analysis of the Pew Internet Survey. En International Journal of Medical Informatics. Vol. 82, no. 3, 193-200.

Savolainen, Reijo. 1995. Everyday life information seeking: Approaching information seeking in the context of “way of life”. En Library & Information Science Research. Vol. 17, no. 3, 259-294.

Sears, William y Martha Sears. 2001. The attachment parenting book: A commonsense guide to understanding and nurturing your baby. New York: Hachette Book Group.

Torres, Alezandra; Arminda Suárez y María José Rodrigo. 2014. Educar en Positivo: Primeros resultados y retos de futuro. En Revista Iberoamericana de Sistemas, Cibernética e Informática. Vol. 11, no. 2, 1-13.

Veinot, Tiffany C. 2009. Interactive acquisition and sharing: Understanding the dynamics of HIV/AIDS information networks. En Journal of the American Society for Information Science and Technology. Vol. 60, no. 11, 2313-2332.

Villaescusa Martínez, Víctor y Lorena Sáez Villar. 2013. Búsqueda de información sobre salud a través de internet. En Enfermería Global. Vol. 12, no. 31, 197-205.

Wald, Hedy S.; Catherine E. Dube y David C. Anthony. 2007. Untangling the Web—The impact of Internet use on health care and the physician–patient relationship. En Patient Education and Counseling. Vol. 68, no. 3, 218-224.

Walker, Christopher. 2012. The information world of parents: a study of the use and understanding of information by parents of young children. En Library Trends. Vol. 60, no. 3, 546-568.

Webb, Lynne M. y Brittney S. Lee. 2011. Mommy blogs: The centrality of community in the performance of online maternity. En Moravec, M., ed. Motherhood online. Cambridge: Cambridge Scholar Publishing. p. 244-257.

Wildevuur, Sabine E. y Lianne W. Simonse. 2015. Information and Communication Technology–Enabled Person-Centered Care for the “Big Five” Chronic Conditions: Scoping Review. En Journal of Medical Internet Research. Vol. 17, no. 3, e77.

Wilkins, Victoria; Marc N. Elliott; Andrea Richardson; Paula Lozano y Rita Mangione‐Smith. 2011. The association between care experiences and parent ratings of care for different racial, ethnic, and language groups in a Medicaid population. En Health Services Research. Vol. 46, no. 3, 821-839.

Wu, Lei y Hoyoung Ahn. 2010. Making sense of conflicting health information: an exploratory study. En Proceedings of the American Society for Information Science and Technology. Vol. 47, no. 1, 1-9.

Xiao, Nan; Raj Sharman; H. R. Rao y Shanbhu Upadhyaya. 2014. Factors influencing online health information search: An empirical analysis of a national cancer-related survey. En Decision Support Systems. Vol. 57, 417-427.

Zaslow, Emilie. 2012. Revalorizing feminine ways of knowing: the challenge to biomedical epistemology in an online mothers’ health community. En Information, Communication & Society. Vol. 15, no. 9, 1352-1372.


Downloads

Downloads per month over past year

Actions (login required)

View Item View Item
Contact us
Send email Sponsors
Sponsor: AIMS Sponsor: D&P Sponsor: UniNa CAB Get connected
Facebook Facebook Twitter Twitter Linkedin LinkedIn RSS RSS