“Information Work” and Chronic Illness: Interpreting Results from a Nationwide Survey of People Living with HIV/AIDS

Hogan, Timothy P. and Palmer, Carole L. “Information Work” and Chronic Illness: Interpreting Results from a Nationwide Survey of People Living with HIV/AIDS., 2005 . In 68th Annual Meeting of the American Society for Information Science and Technology (ASIST), Charlotte (US), 28 October - 2 November 2005. [Conference paper]


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English abstract

While there is a substantial body of research which describes how the HIV-positive community seeks and uses information, much of that work fails to consider these activities in relationship to the experience of living with long-term chronic illnesses. In this paper, we present results from our survey study on the information preferences and practices of the HIV-positive community. We compare our results to previous findings on the HIV-positive community and people living with another chronic condition, multiple sclerosis (MS). Applying the chronic illness trajectory model developed by Juliet Corbin and Anselm Strauss, we examine what this body of research tells us about the management of “information work.” We identify the information sources that are most important, the attributes of information that influence its use, and the tensions inherent in managing information in the day-to-day lives of the chronically ill. By extending Corbin and Strauss’s model to the aspects of information emphasized across studies, we begin to articulate the fundamental nature of information work in living with chronic illnesses and how information services can be more responsive to the needs of the chronically ill.

Item type: Conference paper
Keywords: information retrieval ; information use ; chronically ill
Subjects: B. Information use and sociology of information > BH. Information needs and information requirements analysis.
B. Information use and sociology of information > BI. User interfaces, usability.
B. Information use and sociology of information > BA. Use and impact of information.
H. Information sources, supports, channels. > HZ. None of these, but in this section.
Depositing user: Norm Medeiros
Date deposited: 10 Mar 2006
Last modified: 02 Oct 2014 12:02
URI: http://hdl.handle.net/10760/6925


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