Azalea : un sistema di conoscenza in oncologia a disposizione di pazienti e cittadini. Roma, 16 giugno 2005

UNSPECIFIED Azalea : un sistema di conoscenza in oncologia a disposizione di pazienti e cittadini. Roma, 16 giugno 2005., 2005 (Unpublished) [Conference proceedings]

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English abstract

Azalea. An oncology knowledge system aimed at patients and the public. Proceedings of the conference held 16 June 2005 at the Regina Elena Cancer Institute, Rome, on the inauguration of the Digital Library – Knowledge Centre “R Maceratini” and the Patient Library. The conference was dedicated to the Azalea Digital Library, accessible via www.azaleaweb.it, which was created as the result of the multicentric collaboration between the seven approved “Scientific Institutes of Hospital Admission and Treatment” (IRCCS) specialising in oncology and under the umbrella of the Alliance Against Cancer, i.e. the Italian “comprehensive cancer centres”. Azalea offers quality controlled information integrated in various formats, such as leaflets, electronic resources, clinical trials, and associations, thereby ensuring that patients are presented with a complete range of cancer information sources. Presentations by doctors, psychologists, librarians and informatics specialists deal with various areas, including information for patients within the ambit of Evidence-Based Medicine, aspects regarding the dissemination of clinical trials information, the initiatives of associations and institutions in the development of leaflets and web resources, and the creation of patient libraries and patient information points. The opening session focused on the organisation and development issues regarding knowledge centres in healthcare. At the international level the Catalogue et Index des Sites Médicaux Francophones (CISMeF) was examined. The study day was aimed at presenting an overall panorama of the state of the art in Italy on health information initiatives for patients and the public.

Italian abstract

Azalea : un sistema di conoscenza in oncologia a disposizione di pazienti e cittadini. Atti della conferenza tenutasi il 16 giugno 2005 all'Istituto oncologico Regina Elena, Roma, per l'inaugurazione della Biblioteca digitale - Centro di conoscenza “R Maceratini” e della Biblioteca del paziente. La conferenza è stata dedicata alla biblioteca digitale Azalea, accessibile a www.azaleaweb.it, creata come risultato della multicentrica collaborazione tra i 7 approvati “Istituti scientifici di accoglienza e trattamento ospedalieri” (IRCCS) specializzati in oncologia e sotto l'ombrello dell'Alleanza contro il cancro, cioè gli italiani “centri comprensivi per il cancro”.

Item type: Conference proceedings
Keywords: Educazione del paziente, sistemi informativi per la comunicazione oncologica con i pazienti, biblioteche mediche, informazioni sul cancro, informazioni sulla salute in Internet, informazioni sanitarie, biblioteche digitali, informazioni biomediche online, protocolli clinici, Bibliosan, medicina basata sull'evidenza Patient education, databases, medical libraries, neoplasms, cancer information, health care on the internet, Azalea, consumer health information, digital libraries, online biomedical information, information systems for oncological communication with patients, MESH, Evidence-Based Medicine, clinical protocols, Catalogue et Index des Sites Médicaux Francophones, CISMeF
Subjects: I. Information treatment for information services > IJ. Reference work.
B. Information use and sociology of information > BA. Use and impact of information.
C. Users, literacy and reading. > CD. User training, promotion, activities, education.
D. Libraries as physical collections. > DK. Health libraries, Medical libraries.
Depositing user: Fabio D'Orsogna
Date deposited: 12 Sep 2006
Last modified: 02 Oct 2014 12:04
URI: http://hdl.handle.net/10760/8103

References

"SEEK" links will first look for possible matches inside E-LIS and query Google Scholar if no results are found.

GAETANA COGNETTI - ROSSELLA APREA, Informare i pazienti, “Panorama della Sanità” 40 (2004) 35

“D26 Oncology Patients And Information in the Internet era: a survey on Patient satisfaction of the Oncology Information Point, a service for patients in the scientific Library of a cancer research institute”. VI Congresso Nazionale di Oncologia Medica, Bologna, 21-25 settembre 2004

“Azalea. First co-operative oncologic project in Italy for a patient digital library”. 9th European Conference for Medical and Health Libraries, Santander, Spain, 22-25 Settembre 2004

ANNA BOGLIOLO [ET AL.], More information, more choice: an Italian database for oncology patients, “Annals of Oncology” 16 (2005) 1962-1967

ADRIAN BURTON, New Italian website for patients with cancer, “Lancet Oncology” 7 (2006) 18


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